Ever since the day after I announced (about 10 days ago) that I had successfully prepared for and litigated a trial without adverse affects, I've been malingering below my baseline. Not exactly crashed, but teetering between crashed and baseline. If I were the slightest bit superstitious, I'd think I was jinxing myself with blog posts.
It reminds me of the time back in November when I sort of "announced" that I had taken a step up in my "baseline" and was about 10% better. I'd been feeling noticeably better for about 2 months at the time. A couple weeks later I went right back down.
I think in the future I'm going to hold off announcing these sort of triumphs [sarcasm]. Not because I'm superstitious, but because I feel a little foolish later when it turns out I didn't get away with it.
Ah well. Lesson learned.
I hope you are doing well and staying warm.
Please check your email. Thanks! cris
ReplyDeleteSorry to hear you have dropped a bit in your baseline......I have as well. My 2nd cortocosteroid treatment didn't have nearly the effect of the first one. I continue to mystify each doctor who treats me. How do you handle the emotions of regressing with all this? I try not to get too excited when something seems to help me improve, only to be transient. Starting to think that maybe I will just need to manage the symptoms at some point. I mean, how many treatments are out there? I actually started a trial of Vyvanse at the suggestion of my PCP. Since my brain fog has been more problematic the past 3 weeks, I thought to try this and see. I can tell a noticeable difference about 20 minutes after I take what is considered a small dose (30 mg)which last about 8 hours. Very much has helped me at work to accomplish more,and focus. I know I am treading into the area of psychostimulants, but economics may dictate this. I can't comprimise my job for now, and if this lets me work FT I may consider this ongoing treatment. Never thought I would be in this position at 49 years old, and wondering how long I can push it until I have no choice but to cut back.
ReplyDeleteBret, I know your frustration well. I also wonder what will happen if/when I run out of treatments to try. I never want that to happen. Even if none of them work, I just like having the hope that the next one just might work.
DeleteEvery once in a while I find one that gives me a small improvement, so my hope is that I can add a bunch of small improvements up into a large improvement. Hopefully I can do that without getting to the point where I'm popping 50 tablets a day, and spending God knows what. But I'm going to go full steam ahead with this genetic testing and nutragenomics thing. I'm convinced it will help. We'll see...
I hope the Vyvanse keeps working for you. Please let me know how it goes.
Patrick, I have had exactly the same experience, more than once. It never fails! Sorry to hear it got you too. I now try to remember not to share the good news until I've had it so solid for so long that it's no longer worth remarking upon. :) If only announcements of crashes worked in the other direction.
ReplyDeleteLol. Thanks J! I'm glad I'm not the only one who's been victim to the blogging jinx, but sorry it happens to you too.
DeleteYou know what, though, this time the announcement of the crash (above) did seem to lift the crash. Wait, uh oh. By saying that, am I guaranteeing to go back down? lol.