Recently I came across this new article that provides a little more hope for those, like myself, looking for good news. While the author doesn't reduce his findings to a percentage, he clearly believes that most PWMEs will "recover" in one sense or another. His sources and authorities seem sound.
I'm going to have to remember this article and return to it every so often. The problem is, while message boards are a great way to network with other patients and learn about new treatments, they also leave one with the impression that very few people are recovering. But, as my father-in-law (a scientist) pointed out, the ME/CFS message board crowd is a "self-selecting" group. The boards may not be the best places to get a sense of remission rates.
While the linked article certainly lifted my spirits, it also ends with a cautionary note about what is meant by "recovery."
"As I have already stated, a classic mistake people with CFS often make is to think recovery means "returning to how I was living before I got sick." The person will seek to recreate the conditions in which illness initially developed, and will of course relapse. Many are presented with this lesson repeatedly, until they shift their criteria for what "recovery" means. It is not desirable to return to "how it was before."I would love to return to exactly how I was before, but I'm not expecting that. If I can just get to a point where I can do some mild exercise without crashing, and plan family trips without worrying about whether a crash will interfere, I will be happy.