I've now been taking Cipro since last Wednesday night (12 doses out of a total of 20) and I still have the pain. Oddly, there was a reprieve on Sunday, when I felt almost no pain all day, and then it came right back on Monday. I have been very good about taking Cipro apart from other supplements and food containing minerals, to ensure absorption. The D-Mannose has not helped either.
I now believe that the issue probably is not bacterial.
I have a return appointment with the urologist on Monday, at which point I will explore other possibilities with him. I posted about this issue on an ME/CFS forum recently and got a surprising number of good suggestions and possibilities. One possibility I wonder about is if it could be candida in the UT, due to deficient immunity. I may try a few days of Diflucan and see if that helps.
Thanks to everyone who has given me feedback and advice on this since my last post. We truly have a knowledgeable and compassionate community that (for the most part) works together to help one another.
P.S. I am aware of the significant risks that Cipro poses, and believe me, I did not take them lightly. I accepted the risk and unfortunately it did not pay off. I thank those who raised the issue nonetheless.