Tracking my efforts to beat Myalgic Encephalomyelitis (ME), aka CFIDS, aka CFS

Tracking my efforts to beat Myalgic Encephalomyelitis (ME), aka CFIDS, aka CFS

Tuesday, December 3, 2013

A quick follow-up to my groin pain post

I've now been taking Cipro since last Wednesday night (12 doses out of a total of 20) and I still have the pain.  Oddly, there was a  reprieve on Sunday, when I felt almost no pain all day, and then it came right back on Monday.  I have been very good about taking Cipro apart from other supplements and food containing minerals, to ensure absorption.  The D-Mannose has not helped either.

I now believe that the issue probably is not bacterial.

I have a return appointment with the urologist on Monday, at which point I will explore other possibilities with him.  I posted about this issue on an ME/CFS forum recently and got a surprising number of good suggestions and possibilities.  One possibility I wonder about is if it could be candida in the UT, due to deficient immunity.  I may try a few days of Diflucan and see if that helps.

Thanks to everyone who has given me feedback and advice on this since my last post. We truly have a knowledgeable and compassionate community that (for the most part) works together to help one another.

P.S.  I am aware of the significant risks that Cipro poses, and believe me, I did not take them lightly.  I accepted the risk and unfortunately it did not pay off.  I thank those who raised the issue nonetheless.


  1. Perhaps get the Urologist to take your PSA levels? Just to be safe.
    Sorry to hear the pains have come back, but glad you had at least one day pain free. Folks swear by Saw Palmetto to keep prostate swelling down -- I've not tried it.
    I eat a ton of coconut oil, though and haven't had an issue with yeast for about a year. It's not going to end a florid case but it could help with maintenance if it does turn out to be candida and you knock it back with meds to a manageable level.
    Hope it works out for you regardless!

  2. Just wanted to mention that Interstitial Cystitis/ Prostatitis is fairly common in patients with M.E. Might be worth looking into and discussing with your urologist if not already done so. Good luck and hope you are feeling better soon.

    1. Hey Patrick, sorry to hear about the latest issue. Any blood in the urine? I had some this past summer which led to a biopsy of bladder tissue. Negative thankfully, but interesting to hear Kari's comments on this issue in people w/ME. Just another item in our ever changing health issue episodes. I have stabilized the past few months with Saline IV's every 2 weeks, vyvanse and gabapentin daily. Actually this has me in a sustained period of feeling as good as I have in my now 3 year journey.