A friend of mine published this moving two-part blog post about her experiences with Ampligen. It's pretty fascinating for many reasons. Her pre-Ampligen experiences again highlight how miserable ME/CFS can be for those who become severely affected. No matter how many stories from severely ill patients I hear, I never get desensitized. It's just astounding when you compare the realities against the public perception of "that little fatigue thing."
I also hadn't fully realized what a sea change it would be to get Ampligen approved for ME/CFS. I mean, I knew, but I didn't really know. I understood the significance of it possibly becoming the first FDA drug approved for ME/CFS. (*sigh*) But, I didn't know, for instance, that people can retain the benefits for years afterwards. I didn't know it could make that much of a difference for people.