Tracking my efforts to beat Myalgic Encephalomyelitis (ME), aka CFIDS, aka CFS

Tracking my efforts to beat Myalgic Encephalomyelitis (ME), aka CFIDS, aka CFS

Tuesday, June 11, 2013

A must-read blog post: Ampligen Saved My Life

A friend of mine published this moving two-part blog post about her experiences with Ampligen.  It's pretty fascinating for many reasons.  Her pre-Ampligen experiences again highlight how miserable ME/CFS can be for those who become severely affected.  No matter how many stories from severely ill patients I hear, I never get desensitized.  It's just astounding when you compare the realities against the public perception of "that little fatigue thing."

I also hadn't fully realized what a sea change it would be to get Ampligen approved for ME/CFS.  I mean, I knew, but I didn't really know.  I understood the significance of it possibly becoming the first FDA drug approved for ME/CFS. (*sigh*)  But, I didn't know, for instance, that people can retain the benefits for years afterwards.  I didn't know it could make that much of a difference for people.


  1. Wow, talk about a game changer. You wonder what it will take to get this drup available to us mortals. With results like this, and how it can bring more quality of life to PWC's, you would think it could be approved. Say, curious if you ever brought up Vyvanse to your doctor at all. As I have mentioned, if I had to take only one drug/supplement, this would be it.

    1. Bret, I haven't had a chance to talk to my doctor about Vyvanse yet, as my appointments are spread out every 4 months. It's on my list of questions to ask though. On your recommendation, I am very curious about it now. It sounds promising.