I survived the trip to Catalina Island for my grandfather's funeral. In fact, my recovery from last Thursday's crash, before the trip, was unprecedented in its speed. I'd never before risen 25% on my health rating scale from one day to the next, but it happened just in time to get me through that funeral and the rest of the two-day trip to Catalina.
I've been told by other PWMEs that sometimes "adrenaline kicks in" to get one through an outing like this. Frankly, I'd been skeptical of these claims because I couldn't understand what adrenaline has to do with viruses, methylation, and other issues associated with ME/CFS. But I'm a little more open to that possibility now, especially since I immediately crashed back down after the trip.
As I mentioned in last Thursday's post, the Catalina trip was only one of two out-of-town family obligations I was scheduled to attend on back-to-back weekends. The other is a wedding in New York, scheduled for this weekend.
Since returning home from Catalina and finding myself in a crash once again, I carefully considered whether to cancel the New York trip. But in the end, I've decided to power through it as best I can. This may seem like a reckless decision, but I think it's defensible.
I simply need to give this trip a try and see what happens. As of now, I have no reference point for cross-country air travel. Since becoming sick, I've only traveled on an airplane twice, and both were one-hour hops to San Francisco. One of those trips caused a crash and the other didn't. So I have no idea what will happen after two 5+ hour flights in four days.
If it causes a major crash, at least I'll have something to point to in the future when I need to make tough decisions. At least my future decisions will be based on more than rank speculation. Besides, if I skipped this trip without ever having tried it, I'd always be left wondering if I could have handled it. So this will be an important litmus test. I'm prepared to accept the consequences if it turns into a bad crash.
To reduce my odds of a crash, I plan to wear personal nasal filters like the ones linked here, which were recommended to me by a poster on HealKick. The idea is to protect my weakened immune system from the germ-y airplane cabin air. Except, my vanity won't allow me to walk around with the little bridge that connects the two filters hanging off the bottom of my nose. So I've cut the bridge off with scissors, making the filters completely invisible once inserted. Even so, the filters still contort the shape of my nose to the point where I don't look like myself, but at least I won't have people staring at this funny thing hanging off the bottom of my nose.
I have no idea if these filters will be effective, or if they're just a silly gimmick, but I'm willing to take a chance.
I leave on Thursday and return Sunday. I'll try to update from New York if I can. Wish me luck!