In February, I wrote that I wanted to cut my supplements way down. It was partly because my doctor suggested it and partly because I'd wanted to do it for a long time anyway. Too many supplements is expensive and risks overtaxing the liver. Not to mention they are a hassle. So I listed my supplements in order from those that I was most sure were helping, to those that I was least sure were helping. Then I started eliminating supplements from the bottom of the list.
In April I took a big step back in my baseline health. I didn't think it was because of the reduced supplements, but just to be safe, I went back on all of them. Things returned to normal a couple months later, and so I started eliminating supplements again.
Of the 18 supplements on the list, I'm now only taking half of them. (It's funny, I thought I'd eliminated more than that before I counted just now). But for many of the suplements that I'm still taking, I've either reduced the doses, or I take the weekends off from them. The only supplements/Rx's that I take on weekends now are T3 Thyroid and D-Ribose. Everything else is eliminated on the weekend.
So far, I don't think I feel a difference. As long as that continues, I will continue to cut down on supplements until either I eliminate all but a few obvious ones (like multivitamin and fish oil), or until I experience a setback.
For those who might wonder, the supps and Rx's I'm still taking are: T3, Vit. D3, Probiotics, Equilibrant, DHA/EPA, D-Ribose, and only occasionally potassium and magnesium.
Others might wonder: given that I haven't missed the supplements I eliminated, does that mean that they were a waste of time and money? That's hard to say. The list I prepared in February was only a fraction of the supplements I've experimented with since getting ME/CFS. Over the last four years, I've probably tried 4 times that many (so about 70 - which is not unusual for a PWME). Given the large number of supps I've tried, it would be absurd to say that they all helped, and I specifically recall some that made me worse. But I think for the most part, I needed the supplements that I took when I took them. I have certainly improved over the last 4 years, although I'm nowhere near where I'd hoped to be by now in terms of improvements. I think most of the supplements that I tried and stuck with for any length of time were the right supplements for me at that time. I don't regret anything.
Dear Patrick, I wonder if you have seen this site: http://hfme.org/. An M.E. patient, Jodi Bassett, with reference to scientists advocates the idea that M.E. is a whole different - and more severe - condition than what is normally called M.E./CFS (the latter always being a misdiagnosis).
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