tag:blogger.com,1999:blog-8695992297755175196.post8940061590071617647..comments2023-11-03T03:46:46.500-07:00Comments on Quixotic: My M.E. Blog: My Daily Health ChartPatrick W. Calvinhttp://www.blogger.com/profile/18367341763526176019noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-8695992297755175196.post-58449647718707406372014-06-17T14:04:31.951-07:002014-06-17T14:04:31.951-07:00Thank so much, Claire! Great post. I loved it!Thank so much, Claire! Great post. I loved it!Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-67692686856210693612014-06-16T03:58:16.215-07:002014-06-16T03:58:16.215-07:00Hi Patrick,
I love reading your blog - I've l...Hi Patrick, <br />I love reading your blog - I've listed this post in an article I've write about management diaries.<br />http://livebedocfs.wordpress.com/2014/05/27/keeping-track-a-call-out-for-management-diaries/<br />As always you are an inspiration! Anonymoushttps://www.blogger.com/profile/07065043310637116629noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-68279950154419122902013-05-14T14:35:30.879-07:002013-05-14T14:35:30.879-07:00I will. Thanks for that recommendation, JT.I will. Thanks for that recommendation, JT.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-85118033626279021552013-05-13T09:27:34.802-07:002013-05-13T09:27:34.802-07:00There is a company called Patientslikeme (www.pati...There is a company called Patientslikeme (www.patientslikeme.com) that provides great tracking tools as well as the ability to compare how you are doing with others with the same condition.<br /><br />While I have been a member their for years, I have not been great at tracking my own things there because I found other forums had much better content. I had hoped to bring Phoenix Rising's forum and Patientslikeme (aka PLM) together by having talks with Cort Johnson and one of the founders of PLM but it never took off. <br /><br />Check out their tools!JThttps://www.blogger.com/profile/17002115816368648020noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-64844750351381483742013-01-11T15:19:59.848-08:002013-01-11T15:19:59.848-08:00Hey Cari! It's always interesting to talk to o...Hey Cari! It's always interesting to talk to other patients that have SOB, cause it's a major issue for me but it seems we don't all get it. I completely agree with you that it seems related to inflammation because I notice I get it when other things are inflamed too, like if my nasal passages are a little constricted. <br /><br />Definitely want to hear about the oxygen therapy. I'll email you about that later. I hope you are doing well - it's been a while since we talked. We'll have to catch up soon...Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-1262202865849525302013-01-10T22:59:00.078-08:002013-01-10T22:59:00.078-08:00Thanks for posting your health chart. I had been w...Thanks for posting your health chart. I had been working on my own & it's great to see what I should add. It's really easy to think of the weeks or months as "bad" & not remember that overall that month was better or try to figure out why it was worse.<br />SOB has been a huge issue for me (I think it's from inflammation). It's in degrees as to how bad it can get but there are times I'd swear a giant elephant was sitting on my chest & my hands/feet get ice cold. If you want to know how I do oxygen therapy to help with it, feel free to email me!Anonymoushttps://www.blogger.com/profile/12833115611069160681noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-32414969734124817692013-01-10T22:56:18.281-08:002013-01-10T22:56:18.281-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/12833115611069160681noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-60857852273143160722013-01-05T22:45:16.935-08:002013-01-05T22:45:16.935-08:00Hi Tiny, I sent you the recipe. Enjoy.
I have not...Hi Tiny, I sent you the recipe. Enjoy.<br /><br />I have not tried oxygen therapy. Have you? Does it help with SOB?Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-24507375760828828432013-01-05T14:12:09.571-08:002013-01-05T14:12:09.571-08:00Patrick,
I am curious, have you tried Oxygen Thera...Patrick,<br />I am curious, have you tried Oxygen Therapy?<br />If you can still share your Stevia Chocolate Syrup Recipe, I would very much like to have it. You can send it to tinychicoy (at) yahoo.com<br />Blessing and best hopes for recovery,<br />TinyAnonymoushttps://www.blogger.com/profile/05265380803271102428noreply@blogger.com