tag:blogger.com,1999:blog-8695992297755175196.post8909236394352116649..comments2023-11-03T03:46:46.500-07:00Comments on Quixotic: My M.E. Blog: Western Blot test says I have Lyme Disease. What?!Patrick W. Calvinhttp://www.blogger.com/profile/18367341763526176019noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-8695992297755175196.post-51295505767147524362016-01-28T10:42:01.925-08:002016-01-28T10:42:01.925-08:00Thanks for your support Elizabeth. I know you kno...Thanks for your support Elizabeth. I know you know the frustration with all the ambiguity in the tests and information that are available to use for chronic illnesses. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-56984750243913184862016-01-22T02:32:11.186-08:002016-01-22T02:32:11.186-08:00If I had received that test result back, I would h...If I had received that test result back, I would have written an identical blog post. I feel the exact same way about the forums and about the Lyme tests and the antibiotic treatments. What a conundrum...Elizabeth Milohttp://elizabethmilo.comnoreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-28786411598715976192016-01-05T09:12:11.132-08:002016-01-05T09:12:11.132-08:00Hi Patrick. I sent you an email about a week ago b...Hi Patrick. I sent you an email about a week ago but I haven't heard back yet. I do not mind, but I just want to make sure you had actually received it? Cheesushttps://www.blogger.com/profile/08001173051527577087noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-63016922247968117612016-01-02T11:06:46.743-08:002016-01-02T11:06:46.743-08:00Thanks Weyland, I think that's my next step - ...Thanks Weyland, I think that's my next step - to see if the test results can be replicated by another lab. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-65710673200925737452016-01-02T11:05:56.126-08:002016-01-02T11:05:56.126-08:00Sandy, I've been thinking about you ever since...Sandy, I've been thinking about you ever since I got this diagnosis. We need to catch up! Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-75734921122127114492016-01-02T05:30:58.684-08:002016-01-02T05:30:58.684-08:00I think you're right to question your doctors ...I think you're right to question your doctors interpretation of the IgM result. There are disorders affecting antibody class switching, but these should be pretty easy to spot (excessive total IgM levels and diminished IgG levels.) <br /><br />The only thing that made your result "CDC positive" is the minimum required positive bands. I still would very much question the reliability of the way iGenix performs the assay. As someone else mentioned, a standard WB test from a reputable lab should clear things up rapidly. weylandnoreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-34672181103977538632015-12-29T17:46:22.589-08:002015-12-29T17:46:22.589-08:00Patty! I'm one of those that got worse with l...Patty! I'm one of those that got worse with long term antibiotics. As in an IV infusion for 42 days straight! No break! Well, I had a short break because my liver got super alarmingly inflamed from tx and we thought id need to take out my gallbladder too. Soooooo yea. And I am pretty certain I had a tick borne infection because we must used regular old Quest labs. <br /><br />With that said, everyone else I regularly saw in the infusion room got improvements, some miraculous improvement and back to work! But....many ended up back for more antibiotics in a year or so. <br /><br />So, I don't know what the answer is. We're all so individual. The only thing I've concluded is that if someone has chemical sensitivities, it's better to go the herbal route. But that's only based on my observations in meeting patients. <br /><br />Wishing you luck!Sandynoreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-67586365156081227382015-12-28T14:49:46.580-08:002015-12-28T14:49:46.580-08:00That's a good point. I might do that. My emai...That's a good point. I might do that. My email is QuixoticMEblog at gmail. I would love to hear what else you have to say on this subject. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-81580652869132163612015-12-28T14:46:59.700-08:002015-12-28T14:46:59.700-08:00Thank you! I guess i would never say never, but r...Thank you! I guess i would never say never, but right now I do not forsee doing the long-term antibiotics thing. I have interacted with a number of Lyme patients on forums over the last 4 or 5 years and I don't know any long-term antibiotics users who've actually improved. Well, possibly one, but it seems most do not improve. Some get worse. Plus, I'm skeptical that the Lyme diagnosis is correct at this point, so I'm not about to destroy my gut biome on a hunch and a questionable test. Thanks again for sharing your thoughts on this...Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-25591834043620571742015-12-28T14:43:22.154-08:002015-12-28T14:43:22.154-08:00Hi Shari. It is really interesting to meet anothe...Hi Shari. It is really interesting to meet another Dr. M patient. I actually switched over to the Beyond Balance formula too, so I hope I have the same results as you. I will check out that book. (BTW, I posted the post above a couple of weeks ago, not a year ago, so it's all fresh for me.) Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-47607521912320607672015-12-28T14:41:02.865-08:002015-12-28T14:41:02.865-08:00Wow, 30 years is a long time, but I'm glad tha...Wow, 30 years is a long time, but I'm glad that you have something more to focus on now. Can I ask, how did you get diagnosed with Lyme? What test was used?Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-56049196397302117952015-12-28T14:39:32.610-08:002015-12-28T14:39:32.610-08:00Thank you, I appreciate that information. Thank you, I appreciate that information. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-33976756587942174422015-12-27T10:18:23.733-08:002015-12-27T10:18:23.733-08:00If you're CDC positive on the igenex test, you...If you're CDC positive on the igenex test, you should be able to replicate it with a CDC certified lab via your standard allopathic doctor. If that is negative then it would mean igenex is probably BS (which is my sneaking suspicion). <br /><br />I'm keen to send you a private email regarding the foamy urine you were experiencing a while back. Can you tell me how?Cheesushttps://www.blogger.com/profile/08001173051527577087noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-27788014988299191102015-12-20T06:17:04.063-08:002015-12-20T06:17:04.063-08:00Thanks again for sharing your continuing saga. As ...Thanks again for sharing your continuing saga. As someone who's also been in this rabbit hole, please don't go down the ridiculous path of long-term antibiotics. It will do you much more harm than good at this point. Also, please don't even consider colloidal silver! Best of luck to you!! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-25121190064897472872015-12-17T08:27:06.682-08:002015-12-17T08:27:06.682-08:00I'm being treated by Dr. M. too. I didn't ...I'm being treated by Dr. M. too. I didn't find that any Byron White formulas were helpful to me. I had more success with Beyond Balance and the most success with the Cowden protocol as it covers not only Lyme but, Babesia and Bartonella to some extent. However, I'm still experiencing relapses after 2 years of treatment. If you haven't already, you need to read Dr. Richard Horowitz' book on Lyme - 'Why Can't I get Better'. It will explain all of the things you need to check out to ensure there aren't other factors keeping you sick (i.e. heavy metal, adrenal, and thyroid testing [preferably TPO antibodies] etc. I guess it's been almost a year since you posted this - I hope you're doing better by now.Birdz of a Featherhttps://www.blogger.com/profile/10951919560997442271noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-56014261331943124502015-12-15T19:52:42.186-08:002015-12-15T19:52:42.186-08:00Patrick......I am soooos sorry to hear about all y... Patrick......I am soooos sorry to hear about all your suffering....I am to sick to write much, but I wanted to tell u, that I too.....found out that I have lyme !! & all it's little 'buddys' that go w/ it, only a year ago, after thinking I had cfs/me for over 30 yrs ....it still blows my mind ! BUT YES....LYME ...I now, consider cfs/me only names that are symptoms (to hide lyme) of Lyme !! (pls let me know if u want any leads) Keep on Keeping on.....w/ Blessing's angeldutyhttps://www.blogger.com/profile/05153446588250441468noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-72677525098559557282015-12-13T20:25:26.323-08:002015-12-13T20:25:26.323-08:00I was exactly where you are at now a year ago. Hav...I was exactly where you are at now a year ago. Having had three negative Western Blot results before, I got a positive one. Lyme is a rabbit hole, and usually expensive to treat. But much better to know what you are up against then to treat something else, which I did for 7 years hardly getting better. A year after diagnosis I am more than halfway there.<br /><br />I would strongly suggest that you look into BAH (Bioresonant Analysis of Health) testing. You'll find information on innovativemedicine.com. This will give you an accurate picture of what else may be going on re: heavy metals, parasites, which coinections, any dental issues. The entire picture for ~ 1000$s. And they will also tell you what treatments are most suitable to your body at this time. But, run from them at that point if you have limited finances, because their treatments are the most expensive around. Use that information to compile your own treatment plan. Btw, I am in no way affiliated with them, just trying to give you a heads up on your research having been there and done there (including the mistakes) myself.<br /><br />Whatever path you chose to trot, remember be brave! and mighty forces will come to your aid.<br />Anonymousnoreply@blogger.com