tag:blogger.com,1999:blog-8695992297755175196.post604706133559886908..comments2023-11-03T03:46:46.500-07:00Comments on Quixotic: My M.E. Blog: Crunching Numbers: My Health Rating Broken Down By Day of the WeekPatrick W. Calvinhttp://www.blogger.com/profile/18367341763526176019noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8695992297755175196.post-69816016537774123022012-07-28T08:08:44.697-07:002012-07-28T08:08:44.697-07:00Yeah, that acceptance thing is probably what I str...Yeah, that acceptance thing is probably what I struggle with the most. Hopefully in another year or so I'll be closer to acceptance like you are. I already think I've come a long way since 7 or 8 months ago when I was diagnosed. At least now I don't obsess daily with how I can claw my way back to full health. <br /><br />Funnily enough, I do sometimes view my CFS as something I signed up for, similar to your broken leg analogy. My doctor thinks I got CFS after contracting an enterovirus from dirty water that I surfed in. I knew that the beach that I surfed at had a health advisory in effect, but I went into the water anyway because the waves were good that day, and got sick 4 days later. But yeah, I still wonder, "why me." Plenty of other people surf there and don't get CFS, so there must be more to it than just bad timing.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-11877603499921578552012-07-28T06:08:14.962-07:002012-07-28T06:08:14.962-07:00I suppose the issue at hand is not to see CFS as a...I suppose the issue at hand is not to see CFS as a foe per se, but to live alongside (deep thought here) it. It is part of us, like it or not. Accepting a limitation that is imposed on you versus one we sign up for (like doing something foolish and breaking a leg) is so hard for me. Thoughts go back to the "why did I not recover from the flu that kicked this off like millions of other do, but not me" attitude. I have come a long way in the almost 2 years with this in my life. But, the journey is far from over in regard to acceptance.Anonymoushttps://www.blogger.com/profile/17670707841180316867noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-25748460049645295442012-07-16T11:32:17.100-07:002012-07-16T11:32:17.100-07:00Bret, I can relate to pretty much everything you s...Bret, I can relate to pretty much everything you said, but this sentence stuck out for me: <br /><br />"I really dislike having to pass on important events, then it is like CFS is winning the battle for my livelihood."<br /><br />I've had that exact same thought many times! Of course, if we push too hard, CFS is going to win the battle later. So it's just a question of when do you want CFS to win, now or later? Nice choices, right?Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-80687771642133306402012-07-13T09:26:11.248-07:002012-07-13T09:26:11.248-07:00This certainly rings true w/me as well.....pushing...This certainly rings true w/me as well.....pushing yourself at these events in order to still be seen as somewhat normal. I really dislike having to pass on important events, then it is like CFS is winning the battle for my livelihood. Like you Patrick, I look healthy and can work 75-80% of the time, so no one outside my inner circle knows my illness. Makes me feel different I guess, which I have had a hard time accepting. Making plans first and then thinking about the consequences is normal for some time....that is how our minds are programmed after being used to no limitations for all those years. Keep up the great work here, I think it is huge to have discussions like this to know what has helped people since there is an endless list of things to try!Anonymoushttps://www.blogger.com/profile/17670707841180316867noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-59545039448428417612012-07-11T10:29:44.738-07:002012-07-11T10:29:44.738-07:00Baffled, "denial of illness" is definite...Baffled, "denial of illness" is definitely something I can relate to. Sometimes I catch myself making plans mentally before I remember that I can no longer do the things I was planning to do. <br /><br />But more to your point, I agree that its very very difficult to remember to take it easy when family is involved. It's just so natural to participate in all the fun and revelry, we forget about the PEM that comes later.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-29408539922108548082012-07-10T21:58:17.906-07:002012-07-10T21:58:17.906-07:00I could totally see that work can be a quieter les...I could totally see that work can be a quieter less stressful environment than home. I'm housebound and often have the most recovery during the week when I'm in the house by myself and can take rest breaks when I want. I often crash on Monday after a weekend filled with activities with hubs and I look forward to a couple of quiet days by myself to recover. I think it is part of my denial of my illness and also the desire to have some sort of a normal life with my family. I often do too much when I have family members around. It is really hard to find a balance between honoring the severity of the illness and participating in some sort of a family/social life.Baffledhttps://www.blogger.com/profile/16763003920036754454noreply@blogger.com