tag:blogger.com,1999:blog-8695992297755175196.post4103164923535141791..comments2023-11-03T03:46:46.500-07:00Comments on Quixotic: My M.E. Blog: Video Explains How to Use Heart Rate Monitor to Avoid Post Exertional Malaise in ME/CFSPatrick W. Calvinhttp://www.blogger.com/profile/18367341763526176019noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8695992297755175196.post-31141869575069088822012-10-02T05:00:00.552-07:002012-10-02T05:00:00.552-07:00This comment has been removed by a blog administrator.Anonymoushttps://www.blogger.com/profile/06852339381561862608noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-69957470323881022582012-09-10T10:53:06.808-07:002012-09-10T10:53:06.808-07:00Thanks for sharing your experiences with a HRM Mir...Thanks for sharing your experiences with a HRM Miriam. I am slowly starting to discover the same benefits that you described. It is a great to know that other PWME's have found them useful in the same ways.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-70349734904925163982012-09-08T05:50:24.900-07:002012-09-08T05:50:24.900-07:00I've been using a heart rate monitor for almos...I've been using a heart rate monitor for almost a year now with great success. Initially I did wear it all day & it was good to learn what normal everyday activities put my heart rate up. But as you say it is uncomfortable & unfortunately I find that my HRM can be a bit faulty and looses contact with my heart when I wear it for longer periods of time. So now I use it mostly for exercise & activities like shopping. Its great to be able to see when its safe enough to do these things & when I need to rest. And wonderful to be able to do a small bit of exercise like going for a walk with less of a chance of a crash. Its not perfect but definitely one of the more useful tools I've found for pacing. I couldn't do without it now!<br /><br />Miriamhttps://www.blogger.com/profile/07095641244876935060noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-62641843947781626992012-08-29T17:36:21.686-07:002012-08-29T17:36:21.686-07:00I'm glad you brought up #3 Greyson. There'...I'm glad you brought up #3 Greyson. There's an interesting segment in the video where they talk about how it's not always physical activities that make one crash, but stress can have the same effect. (It's in the Question #6 section). One of the panelists says that for PWME's, it doesn't matter if it's good or bad stress. He talks about how the clinical definition of stress is simply major changes in one's routine or lifestyle, and that clinically speaking, positive events are still considered "stressful." He went on to explain that studies have shown that even positive stress events cause crashes for PWMEs.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-65844277174091368042012-08-29T15:27:26.961-07:002012-08-29T15:27:26.961-07:00It's nice to have something objective like thi...It's nice to have something objective like this to go by for crashes. Nice find:)<br /><br />For avoiding non-exercise related crashes, I've noticed a few key factors for me to focus on, like <br />1) Don't force wakeup times. Let the body wake up naturally. This is HUGE for me.<br />2) Solid, deep, refreshing sleep 90% of the time at least. I know high quality sleep is a challenge for most PWCs, but figuring out the sleep conundrum is crucial.<br />3) Watch stress levels. If stress is rising (long drives in bad traffic do this to me), find a way to avoid that type of situation. <br />Anonymousnoreply@blogger.com