tag:blogger.com,1999:blog-8695992297755175196.post2055683293826125345..comments2023-11-03T03:46:46.500-07:00Comments on Quixotic: My M.E. Blog: Some pretty big news from Dr. CPatrick W. Calvinhttp://www.blogger.com/profile/18367341763526176019noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-8695992297755175196.post-45883036375551013422014-01-04T10:49:48.241-08:002014-01-04T10:49:48.241-08:00Thanks for all the info :)Thanks for all the info :)Corthttps://www.blogger.com/profile/01853580617414208249noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-61214083841586841942013-12-20T23:18:37.146-08:002013-12-20T23:18:37.146-08:00Hi Anne. So nice to meet you and thanks for shari...Hi Anne. So nice to meet you and thanks for sharing your experience. I always enjoying hearing about the journeys of other patients, even in brief. See you around. :)Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-59983950773213502532013-12-20T15:21:38.379-08:002013-12-20T15:21:38.379-08:00Hi Patrick,
This is the first time i have seen you...Hi Patrick,<br />This is the first time i have seen your blog. Im a long long long time ME patient, good to meet you :)<br />Dr. Susan Levine was my doctor when I started getting treated in 1994. I had mild symptoms from when I was very young, the condition didnt start showing its nasty side until 1990, 1993, I finally find out what the "mystery" disease was when I went to my family doctor and asked him to do bloodwork to see. I didnt hear about Dr. Chia until the last few<br />years, he sounds like an awesome doctor. Thanks for posting the update. I am on twitter and I will post<br />the link for your blog!<br /><br />Anne :)Annehttps://www.blogger.com/profile/04712156511298850521noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-57041593480829052282013-12-18T20:20:33.417-08:002013-12-18T20:20:33.417-08:00Nice to meet you too :)
Yeah that could easily ...Nice to meet you too :)<br /><br />Yeah that could easily end up being a very sticky transposition.<br />I've been very happy to read that Dr, Chia is helping you someAnonymoushttps://www.blogger.com/profile/05882009091617618133noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-90178285219974238802013-12-18T15:01:58.282-08:002013-12-18T15:01:58.282-08:00Hi Curiosity - I've read quite a few message b...Hi Curiosity - I've read quite a few message board threads, articles and blogs by others reporting their experiences with Dr. Chia and it seems he recommends different dosages of Equilibrant for different people at different times. I don't know what he bases this on. Severity of illness? Weight? Sex? Who knows?<br /><br />As for me personally, he did not have me alter my dose of E when I started the inosine. <br /><br />Based on what I've read from his other patients, it seems Dr. C's general approach is to let people keep going up (to a maximum of 6 tabs/day) as long as each increased dose results in an initial start-up effect followed by overall improvement. When the body's reaction becomes too intense, he tells people to scale it back. But again, this is all just my second hand impressions from other patients. Sorry I can't be more helpful. Best of luck.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-77172627447266505432013-12-18T14:02:38.154-08:002013-12-18T14:02:38.154-08:00Good for her Beatrice. That's really generous ...Good for her Beatrice. That's really generous of her.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-74107547336401351362013-12-18T14:00:21.118-08:002013-12-18T14:00:21.118-08:00This comment has been removed by the author.Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-80464266469768879112013-12-18T11:49:37.319-08:002013-12-18T11:49:37.319-08:00This comment has been removed by a blog administrator.Anonymoushttps://www.blogger.com/profile/05882009091617618133noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-55346905704532228712013-12-18T10:02:48.489-08:002013-12-18T10:02:48.489-08:00Hi, I would love to pick your brain on a couple o...Hi, I would love to pick your brain on a couple of quick Dr C-related things, if you had a moment. I'm not able to get to him, but Equilibrant has been my biggest help so far and I would love some insight on his approach. <br /><br />Did Dr. C. have you alter your dose of Equilibrant at all when you started on the inosine, or check any kind of bloodwork? I'm navigating all of this partly on my own (doctors are mostly supportive, but not well informed), and am hoping to add Immunovir to my regime soon. I would love to know if there are any special measures I should ideally be taking. <br /><br />Do you know what he advises in terms of how to know when to increase the dose or leave it stable? I'm at 3 and a quarter pills per day right now, and have been taking it slow. The ill-feeling start-up effects tend to fade down within a couple of weeks after increasing my dose. I'm feeling energized, but almost a little bit wired (which is a great change, but I'm not sure if that's a sign that I've maxed out what it can do for me or if I should keep pushing it). I'm okay going with my own gut on when to increase, but I would love to know if you had any insight on Dr. C's general approach. Curiosityhttps://www.blogger.com/profile/12763355278914736226noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-16605734112010392212013-12-18T02:50:08.817-08:002013-12-18T02:50:08.817-08:00I have a friend with CFIDS who is donating her bod...I have a friend with CFIDS who is donating her body to science. What a noble thing to do!Beatrice Desperhttps://www.blogger.com/profile/10843520699216089362noreply@blogger.com