tag:blogger.com,1999:blog-8695992297755175196.post1604582693498394119..comments2023-11-03T03:46:46.500-07:00Comments on Quixotic: My M.E. Blog: Hand and finger pain / numbness in ME/CFS?Patrick W. Calvinhttp://www.blogger.com/profile/18367341763526176019noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8695992297755175196.post-44037498894431254962017-05-06T07:28:30.362-07:002017-05-06T07:28:30.362-07:00I have some of this... started in Dec. I'm un...I have some of this... started in Dec. I'm undiagnosed at this point, but this was the first symptom where my doctor started to pay attention to me. Been fatigued since Aug. Over 25 yrs ago I had a Epstein Barr/Chronic fatigue episode. This seems to be a relapse. Many of the same symptoms/sensations. Numbness and slight pain in finger tips (and toes) is a new symptom for me. I noticed cold sensitivity taking something out of the fridge the other day (the fridge isn't THAT cold), where it hurt to hold this cold bag of milk in my palm. I might be pre-diabetic, but my number isn't that high. I'm thinking it's viral attack on peripheral nerves. (This all started with a lower leg pain that seemed to be possibly nerve related in Jun. Now that he's listening, I've asked doctor for an EBV test. Always worried about possible more-serious issues, but I guess that's par for the course. Thanks for posting. These new symptoms are what scare me. (I have some foot cramping which seems to be getting worse and spreading up my leg. This could be peripheral nerve-related also, though.) Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-16666328402648659542017-04-19T12:38:25.000-07:002017-04-19T12:38:25.000-07:00hi,
i get numbness in a crash, more noticeable at ...hi,<br />i get numbness in a crash, more noticeable at night, hands particularly. I think it part of the cell defense mechansim by CFS that causes it. I also get air hunger like you also.<br />I restarted fibroprotek by algonot (its better for CFS than the other products)<br />greg.<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-47883812321799549322017-04-03T09:47:32.864-07:002017-04-03T09:47:32.864-07:00That must be so frustrating. I hate it when docto...That must be so frustrating. I hate it when doctors don't have an explanation for something and you're forced to stop asking about it. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-88954313082149212312017-04-03T09:46:15.693-07:002017-04-03T09:46:15.693-07:00Some patients definitely get peripheral neuropathy...Some patients definitely get peripheral neuropathy. I'm not sure about the diabetic kind -- I have been tested for that and it was negative. I will check out your link. Thank you!Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-80566491949253835942017-04-03T09:44:39.111-07:002017-04-03T09:44:39.111-07:00Thanks! Your comment came at a good time. I happ...Thanks! Your comment came at a good time. I happen to be reading Dr. Afrin's book on MCAS right now. My doctor has suggested that we could consider testing for MCAS, so we might turn to that next. It will be interesting...<br /><br />I appreciate you sharing your experience with MCAS. I am more inclined to approach it with caution now. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-63096993824794468322017-04-02T21:43:44.006-07:002017-04-02T21:43:44.006-07:00I definitely get lots of numbness in my right hand...I definitely get lots of numbness in my right hand especially. I know that I have different blood pressures on each arm (which I was told is not good)..so figured the numbness is due to some blood flow/pressure irregularities. It seemed like the doctors didn't have much to explain about it so I stopped asking about it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-27879706931381567602017-04-02T16:38:36.995-07:002017-04-02T16:38:36.995-07:00I'm not very up-to-date with this, but don'...I'm not very up-to-date with this, but don't some patients get peripheral neuropathy? My concern would be diabetic neuropathy as it can be more dangerous over time. Here's a link to some info. https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheetleelaplayhttps://www.blogger.com/profile/13797791758393825349noreply@blogger.comtag:blogger.com,1999:blog-8695992297755175196.post-77144370260371998112017-03-30T21:41:45.565-07:002017-03-30T21:41:45.565-07:00Maybe you should look into MCAS. It's sort of ...Maybe you should look into MCAS. It's sort of come up in the past 3 years, as a side to Lyme, CFS, whatever is going on. I was diagnosed with it, was honestly dubious (so many diagnoses over the years, can't possibly all be true). I did take one med for it, didn't noice huge difference, was a fortune. When initially tested, was okay enough to make to appt, get tests, etc—by definition, that's a very good day for me. And those tests showed no problems. However, full out collapsed (I'm sicker than you, pretty sure—though not competing). Managed to get ER doc to pull couple tests. My histamine was really incredibly high. I had mild allergic symptoms—I mean, comparatively not so bad. But I collapsed. So it does seem to be real (there are other tests besides histamine in a panel, btw). It's hard to fully diagnose—I don't know why EVERYTHING involved with this is like that. Also, I almost didn't write this b/c it's a whole other world of a million options, tx complications, 'you get worse before you get better' and not a hell of a lot of specialists who deal with it. But if it hasn't been on your radar, you could look into it. Again, like everything else here, the symptom lists for it often include nearly any possible 'symptom' you could possibly have ever. But I now think its likely causing a lot of my problems and I'm just beginning to contend with it. I think it can/does cause a lot.Unknownhttps://www.blogger.com/profile/00984285161015709171noreply@blogger.com